Care Partners

All programs are live and online. Program times are Eastern Standard Time (EST).

2nd Tuesday each month from 2:30 – 4:00 pm (EST)

Care partners play an important role in caring for the person with Parkinson’s at home and in the community. We set up a monthly series for care partners geared towards brainstorming practical ways to best deal with functional issues regarding caring for someone with Parkinson’s. The series will address limitations in gait, transfers, fine-motor, daily living activities, communication & swallowing. Each session will include explanation on the underlying difficulty and practical details on how to manage it.

NOTE: We will be recording these sessions so others can benefit from the information. However, all programs will be edited so that only presenters will be viewable throughout the program. There will be NO personally identifiable information shared.

Managing a Healthcare Crisis
with special guest speaker Heather Suri, BSN RN CMC

August 9, 2022

Helpful Tips for Care Partners for Traveling with Parkinson’s

July 12, 2022

https://vimeo.com/730357476/62af16d196

Traveling with Parkinson’s doesn’t have to be stressful. With a little planning and some helpful advice, you and your loved ones can enjoy the holidays with a minimum of complications so you can focus on spending time with your friends and family.

Join Parkinson’s rehab specialists Josefa Domingos, Nancy Hillmer, and John Dean for a discussion about common travel concerns including disruptions in schedules, triggers that can worsen symptoms as well as indications of acute issues and how to ask for special assistance at airlines and other transportation options to maximize your travel experience.

The team will also discuss related topics including getting in shape for travel, avoiding overexertion and excessive sun and steps to take if you are driving.  The team will also be available to answer questions throughout the session.

How can care partners understand the impact of cognition on daily activities in Parkinson’s?

June 14, 2022

https://vimeo.com/721056511/c34a4ff642

Attention, processing speed, decision, and overall cognitive function can impact how people with Parkinson perform their daily activities.

When performing two or more tasks during transfers, ambulation and other daily activities, people with Parkinson’s might struggle to divide their attention and this may impact their tremor, rigidity, speed, balance, voice, thinking capacity and posture.

By understanding how and why this happens, care-partners and people with Parkinson’s can be better equipped to manage this impact.

The team will also be available to answer questions throughout the program.
With Josefa Domingos, Nancy Hillmer, and John Dean.

How can care partners support and motivate exercise habits?

May 10, 2022

https://vimeo.com/709721232/c9c41d9886

Exercise is key in Parkinson’s.
It can help improve endurance, mobility, strength and balance. It may also improve non-motor symptoms such as depression, anxiety, fatigue, as well as cognition (thinking). Yet its most important role is informed by a growing body of research associating exercise to slower progression of the disease. 

Care partners also play an important active role in motivating people with Parkinson to exercise and keep motivated.
•  What should a care partner know to help their loved ones get started?
•  What’s the optimal type of exercise to really get results in Parkinson’s?
•  Is the exercise your loved one is doing good enough?
•  How do you find time to support their exercise habits?
•  How do you help them get -and stay – motivated?
•  What if your loved one doesn’t like to exercise?
•  Can an exercise be created or adapted for them?
•  What’s the minimum they should do to get results? 

Join Parkinson’s therapists Josefa Domingos Nancy Hillmer and John Dean for a discussion about common questions people are faced with when thinking critically about exercise in Parkinson’s disease. 

Swallowing and Mealtime Issues

April 12, 2022

https://vimeo.com/699948011/4c3bc24ddf

Join Parkinson’s therapists Nancy Hillmer, Josefa Domingos and John Dean for a discussion about making mealtimes a little easier with tips & tricks for meal preparation, handling silverware, coping with swallowing issues including drooling and improving communication at the dinner table.
The team will also discuss dining in public and in group environments as well as staying hydrated.

Why is sleep such a nightmare in Parkinson’s disease?

March 8, 2022

Bed mobility is a common challenge in day-to-day activities for people with Parkinson’s and their care partners. Transferring from lying down to sitting on the edge of your bed, turning, getting in and out of bed, and sitting and standing from bed are all examples of bed mobility. Encouraging the person with Parkinson to take an active role with these activities will help maintain the highest level of independence possible while also reducing care partner overload.

Click here to view the recording.

Dealing with changes in voice and communication

February 8, 2022

https://vimeo.com/678749687/a23fc2358d

Join Parkinson’s therapists Nancy Hillmer, Josefa Domingos and John Dean for a discussion about voice and speech changes associated with Parkinson’s and tips for improving communication in both the home and out in the community. The team will also discuss common communication barriers in public and in group environments.

How can we make walking easier in Parkinson’s?

January 11, 2022

Click here to view the recording.

Dealing with mealtime difficulties, especially during the holidays

December 14, 2022

We’re sorry, we did not record this program, but we plan to repeat it.

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