A practical empowerment series for people with Parkinson’s and their families.
3rd Tuesday, every other month
from 2:30 – 3:30 pm (ET)
on Zoom
Living with Parkinson’s raises daily questions that are rarely addressed in short clinical visits.
Many people with Parkinson’s—and their families—unintentionally get placed in passive roles. Symptoms go unreported, non-motor issues are minimized, and consultations can feel unproductive.
“How Do I…?” is a bi-monthly self-management program designed to address practical questions in a realistic and empowering way.
Each session focuses on a real-life topic commonly experienced by people with Parkinson’s and their families. Sessions are structured around four simple, actionable pillars regarding each symptom:
- How do I know what to notice?
- How do I track it in a realistic way?
- How do I prepare this information for my appointment?
- How can families help in a useful and supportive way?
Our aim to support the transition from passive to active self-management, strengthen the patient–family–clinician relationship, and improve confidence, clarity, and shared decision-making.
This program is offered in partnership with:
Josefa Domingos PT, PhD
Movement Disorders & Parkinson’s Physiotherapist Specialist | Researcher & Clinician
Egas Moniz School of Health & Science, Portugal.
and
John M Dean MA CCC-SLP
Speech Language Pathologist Parkinson’s Specialist | Researcher & Clinician
Web Editorial Board – International Parkinson and Movement Disorder Society
Our next program . . .
How Do I Assess and Report Issues with Swallowing?
Tuesday, April 21, 2026
Join speech-language pathologist John Dean and Physiotherapist Josefa Domingos for a practical, plain-language guide to swallowing assessment about how swallowing changes occur in Parkinson’s, what symptoms are worth paying attention to, how SLPs and other clinicians evaluate it, and how to let your healthcare team know what you’re experiencing.
How do I . . . assess symptom fluctuations during the day?
Many individuals living with Parkinson’s share a common concern: “I have to plan my entire day because I never know how I will feel.” Some people may stop going out, visiting friends, or spending time with family—not because they don’t want to, but because the uncertainty can feel overwhelming. However, loved ones often express the opposite sentiment: they cherish the time spent together much more than any symptoms.
This is why we created the talk titled “How Do I Assess My Daily Symptom Fluctuations in Parkinson’s?” In this session, we will focus on how to recognize your own daily patterns, what to track, and how families can support these challenges. Our aim is to help you feel more confident when planning your day and communicating with your healthcare team.