This page is being updated on a regular basis to provide documents for you to download, complete, and make available to emergency responders and hospital/rehab teams in the event of a medical emergency or a planned hospitalization.
Patient care for people with Parkinson’s
We suggest you print multiple copies of this document to share with the different teams providing your care.
Caring for patients with Parkinson’s
Parkinson medications must be given on time, every time. There is no window.
CONTRAINDICATED!! Haloperidol (Haldol) and most neuroleptics.
For emergency responders
You can complete this document and post it on your fridge with the documents below, as it is a common place emergency responders will look for this information.
Emergency contact info
Keep a copy of this document on your fridge and in your Emergency Go Bag.
Medications list
Update this document every time there’s a change in your medications. You can print multiple copies to keep on your fridge, in your Emergency Go Bag, and to take to doctor appointments.
Medical history
Hospital go bag check list
The above pages in one PDF
If you’d like to download all 5 pages, they’re all included in this one PDF document.
Remember to keep these documents updated every time there’s a change!
Communication card
Courtesy of the Northern Virginia Resource Center for Deaf and Hard of Hearing Persons, this card can be helpful for patients having difficulty with speaking and communicating, too.
Transcribing apps that can also help:
– Live Transcribe (Android)
– Otter ai (Apple)
MyChart Bedside App
If you’re in an Inova hospital, you can use MyChart Bedside to get real-time, personalized health updates during your hospital stay. Details at inova.org/patients-visitors/mychart/mychartbedside
Emergency Health Profile
Many cities or counties offer a service where you can complete an emergency health profile that enables emergency responders to access it only when you call 9-1-1. It’s voluntary, but the information you share can help the responders assess your situation and provide better care. Please check with your local county about the service they are partnering with. If your city or county is not listed below, and you’d like us to add it, please email sonia.gow@inova.org.
City of Alexandria alexandriava.gov/Smart911
Fairfax County fairfaxcounty.gov/911/emergency-health-profile
Loudoun County loudoun.gov/5570/RapidSOS
Prince William County pwcva.gov/department/public-safety-communications/smart-911
Washington DC ouc.dc.gov/page/what-smart911
Hallucinations and Delusions
Hallucinations and delusions can be difficult to talk about.
More to Parkinson’s offers patient- and caregiver-friendly education on non-motor symptoms, including Parkinson’s disease psychosis, with a focus on awareness and encouraging earlier conversation with care teams.
You can download this helpful self-assessment tool and take it to your next appointment with your doctor.
Dementia vs. Delirium
DEMENTIA is a gradual neurodegenerative process, and is generally not reversible.
It mainly affects memory.
DELIRIUM comes on swiftly, possibly over one to two days, and symptoms can also vary considerably throughout the day. It mainly affects attention.
Can be caused by acute illness, and is reversible.